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A patient with ankylosing spondylitis in recent years
About 214, I suddenly felt stiff neck for a while, and sometimes I couldn't even bend my head. The symptoms were similar to stiff neck. At that time, I just came out to start a business and was under great pressure. At that time, I talked about another project in Shanghai, and I devoted a lot of energy. At that time, I was busy and tired. I thought it might be caused by being too tired. The symptoms lasted for a week, and I felt something was wrong. I asked my doctor friend. I went to the hospital to take a film. The doctor looked at it and said it was not a big problem. It should be mild cervical spondylitis, which may be caused by sitting for a long time and then lack of exercise. I hope I can exercise more. I asked the doctor if it was possible that it was mandatory spondylitis, but the doctor said it wouldn't be. It wasn't serious at that time. I ran around every day, and occasionally I felt uncomfortable.

In 215, the project in Shanghai was successfully won, and many cases came in from the company one after another. Moreover, I was introduced by a friend and talked about love with a doctor in my hometown hospital. I was really happy at that time. Until August of 15, my girlfriend at that time always suspected that I was ankylosing spondylitis, and suggested that I go to the hospital for a check-up. At that time, I was walking and running normally, and the only thing I didn't feel was that my back was a little rickety. Later, I took time to go to the Rheumatology Department of Shanghai Renji Hospital for examination, and it was confirmed as compulsory spondylitis, but I basically knew nothing about the disease at that time. The doctor also said that there was no good way to relieve the disease, and suggested that I take biological agents, but the cost was high. At that time, it seemed that the domestic production was nearly 2, a year, and the import was doubled. But more importantly, I was going to marry my girlfriend and have children. If I take biological agents, the doctor suggested that it is best not to have children for two years. So I discussed it with my girlfriend at that time and thought about coming back for biological treatment after having children.

? It's a pity that my girlfriend and I didn't go on. We broke up in November. I'm not sure whether my diagnosis will affect her, because she is a doctor and knows what my disease will be like in the future. But in the end, the two separated.

After we broke up, I didn't take this disease seriously, because among all the people I knew before, there was no such case at all. Occasionally, it was mentioned that Jay Chou and Zhang Jiayi were the same patients, but at that time, I didn't have any serious problems except a little rickets, and I didn't have any serious problems watching Jay Chou skipping in the concert and Zhang Jiayi playing one TV series after another, so I ignored it myself.

? When the time came to 216, the overall operation of the company was still good. At that time, I had been doing projects for many years and wanted to go out in more ways. So I began to plan to do foreign trade in Africa. At that time, some people in the circle provided resources. In September 216, I left Shanghai and transferred to Nigeria via Dubai. At that time, there were basically no symptoms. When I went, celebrex (that is, Celecoxib capsules) was prepared in my luggage, and occasionally I felt uncomfortable.

In the Spring Festival of 217, I drove home for the New Year, and the pain in my right hip joint was obvious, and I kept eating celebrex to maintain it. At that time, I didn't feel very well, so just after the Spring Festival, I hurried back to Kunshan, and then I asked my Shanghai classmates to help me sign up as a rheumatologist at Ruijin Hospital. Later, the doctor at Ruijin Hospital told me that my right hip joint was getting worse and might need surgery. I needed someone to help me walk.

? When I came back from Ruijin Hospital, I was introduced by a friend to a Chinese medicine doctor, where I massaged every day, slept in an moxibustion bed and pricked blood. At first, it did have some effect, and it was a little more comfortable after I finished it, but the cost was really not low. I got it for a month, and the total cost was about 3 thousand. Later, I felt that the effect was not very great, so I gave up.

? Later, I went to Huashan Hospital in Shanghai and Yuexi Hospital for further examination. The basic conclusions are the same: my right hip joint is necrotic and needs surgical replacement. I also gave up completely.

To tell the truth, I couldn't walk because I was sick at that time, and I couldn't do many business of the company by myself. Moreover, my friend borrowed some money from me when there was a lot of money in the company's account, but he couldn't pay me back at that time for some reasons, so my financial pressure was still a little nervous at that time, but after thinking about it for a long time, I decided to have the operation and try to get well as soon as possible, so I asked my classmates and friends to collect some money.

? Because I didn't get married, I had to call my 7-year-old father to take care of me for surgery. After the operation in the hospital, I went back to my hometown in Huangshan to recuperate. At that time, I was not worried. I just thought about going back to the company and continuing to work hard after I recovered quietly.

? However, after this operation, I felt like opening Pandora's box, and all the bad things followed. Soon after the Spring Festival in 218, I returned to Kunshan, ready to start the company's business well and get back all the losses of the previous year. As a result, I came back less than a week ago and suddenly received a phone call from home. My father fell down while doing farm work on the mountain, and his life and death were unknown. I got a call and rushed back to my hometown overnight. It was more than 4 kilometers away. It took me less than five hours to get to the hospital. When I saw my dying father in the hospital bed, I couldn't stop crying.

? Because I was not too long after the operation, my old mother wouldn't let me accompany me at night, so I had to stay next to the hospital. My mother took care of my father at night, and my brother just went to work in other places. Every day, my sister-in-law came in a hurry to settle the children. At that time, it was really not easy for the family.

I was treated in my hometown hospital for two weeks, because my father fell on the mountain, and the coma time was several hours when he was transported to the hospital, so the cervical nerve was compressed for too long, resulting in high paraplegia. At that time, except for being clear-headed, I couldn't move at all from the neck down. The local hospital said that I could only try the operation, but I was not sure. My mother and I summed it up, and I still felt safer to transfer my father to Suzhou hospital for operation.

when my father finished the operation and then went home to recuperate, I felt that I was not very well at home, and I couldn't help much. Moreover, I was mainly recovering at that time. I went back to Kunshan, which was near June.

When I returned to Kunshan, I didn't know whether it was due to the complication of rigidity or something. I felt like there was a steel thorn in my waist. I was fine sitting and lying down, but it was very painful to walk together. It was so painful that I couldn't walk. It took a normal person more than ten seconds to get from the living room to the bathroom. Moreover, I was constantly sweating with pain. I asked my friend to take me to the hospital for a film examination. There was nothing wrong with it, but it was extremely painful.

in those months, I couldn't go out where I lived, because I couldn't move. I could only order takeout every day, and then the door was left unlocked. When the takeout arrived, the takeaway brother brought it in for me, and then I asked a friend to come to my place once a week to help me clean up the takeout boxes and mineral water bottles. Even for the convenience of taking a shower and going to the toilet, I only wrapped a big bath towel on my body to play with my mobile phone every day. My friend advised me to go home in this way. I smiled and told him that if I went back, my father would still be lying down, and if I went back, I would also be lying down. My mother looked at our father and son and couldn't live like this. My friend sighed and said that there was nothing he could do. He could only come to see me once every two or three days. If I need anything, call him at any time.

? It's really strange to say. In September, one day, the pain suddenly stopped. I walked around the room by myself to make sure that there was no problem. I was ecstatic and called my friend, then took a shower. My friend took me out for a meal. Maybe I was still a little slow, but at least I was able to travel normally. I am still very happy inside.

After the National Day, I tried to find some projects to make some money, but I was in poor health for a long time, and the company didn't operate normally, so I couldn't receive projects more and more, and my monthly expenses were not small. Sometimes my friends would give me a little help, mainly because my credit card was almost overdrawn, and then I took out some online loans and kept overdrawing here and there until April and May 219, when the consequences of my long-term lack of income broke out. Online loans and credit cards began to storm my address book. Many of my relatives and friends called to question that I owed a lot of foreign debts outside, and my credit cards and so on stopped. I tried very hard to explain at first, but later I found that my explanation was also very weak.

When my parents learned about my situation, they transferred me 2, yuan, which was the only money in my family. At that time, I was extremely discouraged, and I was on the verge of collapse. What's more, my left hip joint showed the same symptoms as my right foot. I lived on the 19th floor and stood at the window watching the lights and traffic outside. I think these belonged to me before. Why do I feel so far away now? I was exhausted by the debt call, and I couldn't get out of the room for months. I really wanted to jump and say goodbye to all the troubles in the world. I really thought about it at that time, but I felt that I was too sorry for my parents. If I really wanted to be like this, the pain was that they had already done this at home. Why should I let them bear this?

? During that time, a former friend came to see me, saw my appearance, and transferred some money to me. At that time, I didn't know what I should do. I played games with my computer every day until the Spring Festival approached. I asked a fellow villager to take me back to my hometown, and then I lived on the second floor and never went downstairs.

? During the Spring Festival, when the epidemic broke out in COVID-19, I couldn't do anything, and there was no broadband at home. I could only watch TV upstairs every day, and my mother brought me upstairs for dinner. At that time, my father's health improved slightly, which was a good thing, but when I saw me like this, I sighed every day, so I could only be indifferent and pretend not to see it.

When the epidemic situation in COVID-19 improved slightly, my father took me to the county hospital for a check-up. The result showed that the left hip joint had begun to become diseased, but it was not completely necrotic. When I got home, my father made a lot of Chinese herbal medicines, mugwort leaves soaked my feet and drank honeysuckle every day. After a period of time, my body felt much better, but my feet didn't improve much. So my family discussed it, and it was better to have surgery as soon as possible, otherwise it wouldn't do.

? However, it never rains but it pours, so I'm arranging the time to prepare for the operation. My left foot may be phlebitis of the lower limbs because it hasn't been active for a long time. My left foot is swollen like an elephant leg, and it feels like my foot is about to explode. I rushed to the hospital and was immediately hospitalized for examination. I didn't leave the hospital for more than a week, and then I went to Suzhou for surgery.

At that time, I had no money at all. My friends who had money for the operation helped me to make up a little bit, and my parents helped me to make up a little bit. Then I settled part of my medical insurance, and finally I went home to recuperate smoothly. In that quiet small mountain village, young people were working outside. At ordinary times, the whole village added up to only 2 or 3 people, mostly old people. I accompanied a group of old people every day, which was really fun.

? After staying at home for more than a year, I feel a lot more relaxed. After the Spring Festival, I always wanted to go back to Kunshan to work well, but I didn't know what to do. Later, a former customer called and said that there was a great hope, so I simply cleaned up and went back to the familiar place, trying to say that everything would start all over again.

Everything didn't go as smoothly as it seemed, and the last project was not achieved for various reasons, so I fell into a situation of survival or destruction again. However, many people have helped me. Although most people have seen my situation in recent years and my body has not mentioned it to me, I am still full of pressure inside. Sometimes I feel that success is a step, and sometimes I feel that success is far away. When I came back, I met my friends one by one. Frankly speaking, I can't pay them back yet, but I will.

Anyway, I feel that it has been more than four years since the onset of ankylosing spondylitis. Only I can understand the pain in these four years. The past is over. Adjust my mentality. I am still young in the future. I still have to work hard and come on.