For most patients with rare diseases, their lives will be seriously affected, because the drugs for each rare disease are often very expensive, and many patients simply cannot afford them. However, in order to treat themselves better, families can only choose to bear it, which often leads to the breakdown of families. But for many families, we can help ourselves through some corresponding channels, such as making relevant stories into corresponding news, publishing relevant help information directly through TV or social networking platforms, and through the strength of all people in society to tide over the difficulties. In addition, every year, the country will include rare drugs in medical insurance, so we can wait slowly.
In addition, every city basically has some public welfare funds to provide some help to these rare patients. For example, there is a medical assistance project for rare diseases in Zhejiang Province. If you have a rare disease, you can actively apply for corresponding subsidies from the project to protect yourself. Of course, there are also many corresponding drug purchase AIDS and drug clinical trials. In this process, as long as you know the relevant situation with your family in time, you can enjoy the constructive assistance measures of these innovative drugs through the social charity foundation. Usually we only need to pay 50%.
Patients with rare diseases can seek social help through these corresponding channels. In short, don't give up hope in life. If you can't persist, you can send your story as news in the society and seek more people in the society to help you. Because everyone gives a love, this power is infinite.