Countries with rare diseases generally have subsidies. Through medical insurance subsidies, as long as rural medical insurance or urban medical insurance is paid on time. When treating serious illness or cancer, most of them are reimbursed by the state, and only a little basic expenses are paid. Therefore, we must make preventive policies in advance and do a good job in medical insurance and medical security for ourselves. However, the state has not yet issued relevant policies to include rare diseases in medical insurance subsidies, but there are many public welfare institutions for rare diseases, and the application conditions are different according to different diseases; There are specific aid funds for specific diseases. You can go to their official office to understand the application conditions and apply.

To apply for national aid for rare diseases, it is necessary to submit an application to the local medical insurance department and the civil affairs department to explain the diseases suffered by the patients. It is best to have a doctor's certificate of rare diseases and attach some receipts for treatment. This will attract the attention of superiors.

1, the applicant holds the diagnosis certificate of rare diseases issued by the designated hospital and the budget table of medical expenses (stamped with the official seal of the hospital), and applies to the county, city and district civil affairs bureau for assistance.

2, after verification, the applicant to apply for relief materials, put forward to the county Red Cross, by the local Red Cross to carefully verify the relief object and put forward the audit opinion, and then reported to the provincial Red Cross.

3, submitted by the provincial Red Cross unified rare disease relief fund audit.

How to apply for national assistance for rare diseases;

1. The applicant shall issue the diagnosis certificate of rare diseases and the budget of medical expenses at the designated hospital (with the official seal of the hospital) and apply for assistance at the county, city and district civil affairs bureaus.

2. After verification, the applicant holds the application materials for assistance.

The government can do at least three things:

1, encouraging drug research and development;

2. Ensure drug supply;

3. Guide social organizations to help;

List of rare diseases in children

1. porcelain doll-osteogenesis imperfecta

2. Moon Child-Albinism

3. Sticky baby-mucopolysaccharide storage disease

4. Children who don't eat fireworks-phenylketonuria

5. Glass Man-Hemophilia

6. Gaucher's disease. Arch-tuberous sclerosis.

Legal basis:

People's Republic of China (PRC) social insurance law

Article 4 Employers and individuals who pay social insurance premiums according to law in People's Republic of China (PRC) have the right to inquire about payment records and personal rights and interests records, and ask social insurance agencies to provide social insurance consultation and other related services. Individuals enjoy social insurance benefits according to law and have the right to supervise the payment of their own units.

Fifth people's governments at or above the county level shall incorporate social insurance into the national economic and social development plan. The state raises social insurance funds through multiple channels. People's governments at or above the county level shall give necessary financial support to social insurance. The state supports social insurance through preferential tax policies.